So I approached this by actually looking at my checkbook for the past quarter and coming up with a budget on a spreadsheet. It's not quite as bad as I thought.
There's still a gap, but if Laura were to find work in the 20K per year range, we'd be able to beat it quite handily. Additionally, we have 3 of the kids now doing their after school jobs, and I have started them on paying their own phone bills.
Looking at competitive Saturn Ions on craigslist, we could
probably get $3500 for mine right now, but that would leave us with
$3700 yet to pay off. It still may not be worth it, and I might regain
the abilty to drive in a couple of months or Kate may need the car when
Kim retrieves her chevy.
Also, I expect that for as long as we get the long term disability, we'll be able to put some money away/into investment real estate. There is about $400/month for consumer debt that if we got paid off, would make things much easier. The best strategy of course is pay minimums on everything, except of the one debt that is at the highest interest rate, and then nail that one first. I haven't yet sorted them that way, but I will soon. That top debt might just be the Ion for all I know.
It's still going to be touch and go, as we have not yet nailed down what health insurance is going to cost.
Also, I have reached out to Shirley at PSS in Massachusetts about the $800 / month gig. She will have to talk it over with Jeff, but I expect it will work out.
Thursday, May 26, 2016
Closing Gaps
Yesterday was a bit of an adventure with the finances.
On one hand I found how much my Social Security Disability is expected to be in September. As most people would have expected, it just won't be enough. In fact it's about 1/3 of what I need to sustain my budget. This of course has me slightly panicked, but at the same time just urges me to action. At least for the next few months, I think most of that gap will be taken up by the Long Term Disability (LTD). However, LTD won't last forever, and that is also something I don't know: How long should I expect it to last, and exactly how much will it be?
As you know by now, I do have an optimistic nature, and I do think it will get us by while I look at the real estate investment that needs to be accomplished. The real estate will be the true source of permanent income.
I also learned that the life insurance is only for $50,000 and not for $100,000 as I thought.
It's clear that because my pay stub shows no extra deductions for the life insurance premium, that I had only opted for the standard 50K that was offered to all employees.
Still the 50K will be enough to get the real estate started, and the capitalization rates of 15% in the Carolinas is more than the rough 10% I was planning. I should be able to get the 50K to stretch far enough to get really close to covering the gap.
But this too will be a challenge, because I would not only need to cover the gap, but exceed it enough that the LLC will have funds to grow.
But I have alternate plans that should fix that as well.
Also, I have found that SSD will allow me to work a little, provided I don't make more than $810 in a month. I think contacting one of my old employers in Massachusetts can fit that bill. I have worked remotely for them in the past, and they often have little extra jobs I can do that would be a the right size for this sort of thing.
That $810 will only make up less than a 1/4 of the gap, and at the rates I would intend to bill, we're talking about 5-6 hours of work a week. This would make it more of a C++ hobby than a real job and would just keep my head in the C++ world.
Probably the worst of it is that I will see my programs that I wrote some five or six years ago, and some "violence done" to it by the other programmers in that time. I've done this once before with them and it was astonishing how bad some of my really beautiful stuff had been damaged beyond recognition.
I only hope I don't get a ulcer from looking at this stuff now.
Oh and in all that, my mortgagee, PennyMac called yesterday and was able to streamline my VA loan from 4.00% to 3.25%. Sure they tacked on about $6000 to the principle, but cashflow is paramount at this point, and we lowered my monthly bill by $135.
Last night I also went out with the Men's Group at church for Benediction, Mass, and a beer after church. I met up with a new guy named Mark who also has some financial planning resources, and in addition, Chris tells me that he's sold some seven cars using Craigslist, so there is some renewed hope that I can dispose of the Ion this way.
Reducing expences will be another way to close the gap, so I'm all for it.
tschüß!
or as Lesl4ie and I used to write before UTF-8 : tschu"s!
On one hand I found how much my Social Security Disability is expected to be in September. As most people would have expected, it just won't be enough. In fact it's about 1/3 of what I need to sustain my budget. This of course has me slightly panicked, but at the same time just urges me to action. At least for the next few months, I think most of that gap will be taken up by the Long Term Disability (LTD). However, LTD won't last forever, and that is also something I don't know: How long should I expect it to last, and exactly how much will it be?
As you know by now, I do have an optimistic nature, and I do think it will get us by while I look at the real estate investment that needs to be accomplished. The real estate will be the true source of permanent income.
I also learned that the life insurance is only for $50,000 and not for $100,000 as I thought.
It's clear that because my pay stub shows no extra deductions for the life insurance premium, that I had only opted for the standard 50K that was offered to all employees.
Still the 50K will be enough to get the real estate started, and the capitalization rates of 15% in the Carolinas is more than the rough 10% I was planning. I should be able to get the 50K to stretch far enough to get really close to covering the gap.
But this too will be a challenge, because I would not only need to cover the gap, but exceed it enough that the LLC will have funds to grow.
But I have alternate plans that should fix that as well.
Also, I have found that SSD will allow me to work a little, provided I don't make more than $810 in a month. I think contacting one of my old employers in Massachusetts can fit that bill. I have worked remotely for them in the past, and they often have little extra jobs I can do that would be a the right size for this sort of thing.
That $810 will only make up less than a 1/4 of the gap, and at the rates I would intend to bill, we're talking about 5-6 hours of work a week. This would make it more of a C++ hobby than a real job and would just keep my head in the C++ world.
Probably the worst of it is that I will see my programs that I wrote some five or six years ago, and some "violence done" to it by the other programmers in that time. I've done this once before with them and it was astonishing how bad some of my really beautiful stuff had been damaged beyond recognition.
I only hope I don't get a ulcer from looking at this stuff now.
Oh and in all that, my mortgagee, PennyMac called yesterday and was able to streamline my VA loan from 4.00% to 3.25%. Sure they tacked on about $6000 to the principle, but cashflow is paramount at this point, and we lowered my monthly bill by $135.
Last night I also went out with the Men's Group at church for Benediction, Mass, and a beer after church. I met up with a new guy named Mark who also has some financial planning resources, and in addition, Chris tells me that he's sold some seven cars using Craigslist, so there is some renewed hope that I can dispose of the Ion this way.
Reducing expences will be another way to close the gap, so I'm all for it.
tschüß!
or as Lesl4ie and I used to write before UTF-8 : tschu"s!
Tuesday, May 24, 2016
Palliative Care
Today was like most any other, beginning with a Physical Therapy appointment in the morning. The regular nurse wasn't available so I had a substitute named Sherry who was advised by Christy to work me pretty hard.
I will say that my balance and strength are definitely improving. Sherry worked all the same exercises that Christy would have, and a few others. I have confidence that I could be out fielding some graveyards and working on my Ingress stats again.
I also had a palliative care appointment with doctor Boris Krivitsky. All we really did was refill my methadone and oxycodone prescriptions. It seems that most of my instincts have been correct up to this point. For example, Dr. Krivitsky actually encourages his patients to write, and he was happy to hear that I had already started a blog. I just need to work on it a bit more :P
Also we had discussed that the children may need to have a little counseling. For me, I feel that my perspective is a little unique and I might not need as much counseling as many cancer patients do. Though I sometimes wonder if I shouldn't consider one of the group sessions so thbat maybe I could be of benefit to others, because I feel I got my head screwed on right.
Laura's schedule was a little loaded today, and while she was able to provide a ride to the appointment, I used Uber for the ride back, which was $13.44. It was a bit more because the driver was new, and she made a wrong turn which I think added a buck to the typical fare. Apparently I was her second fare in her new Uber career. I gave her a 5 for review anyway. She was a careful driver, she just made one wrong turn.
I don't intend to make a huge habit of Uber, but when I need a ride and we're out of options, it sure does help. Hopefully, my confidence to drive will return before too long, and this would help me get back into more Ingress as well.
I will say that my balance and strength are definitely improving. Sherry worked all the same exercises that Christy would have, and a few others. I have confidence that I could be out fielding some graveyards and working on my Ingress stats again.
I also had a palliative care appointment with doctor Boris Krivitsky. All we really did was refill my methadone and oxycodone prescriptions. It seems that most of my instincts have been correct up to this point. For example, Dr. Krivitsky actually encourages his patients to write, and he was happy to hear that I had already started a blog. I just need to work on it a bit more :P
Also we had discussed that the children may need to have a little counseling. For me, I feel that my perspective is a little unique and I might not need as much counseling as many cancer patients do. Though I sometimes wonder if I shouldn't consider one of the group sessions so thbat maybe I could be of benefit to others, because I feel I got my head screwed on right.
Laura's schedule was a little loaded today, and while she was able to provide a ride to the appointment, I used Uber for the ride back, which was $13.44. It was a bit more because the driver was new, and she made a wrong turn which I think added a buck to the typical fare. Apparently I was her second fare in her new Uber career. I gave her a 5 for review anyway. She was a careful driver, she just made one wrong turn.
I don't intend to make a huge habit of Uber, but when I need a ride and we're out of options, it sure does help. Hopefully, my confidence to drive will return before too long, and this would help me get back into more Ingress as well.
Saturday, May 21, 2016
Fire Fire Fire!
Thankfully, it's not my fire, but it touches us deeply.
Waking this morning, Laura found that she had a voice mail from Brianna who is the roommate of my co-worker Dustin Murano who brings us Lenore to watch. It turns out that Dustin's wife has set fire to Dustin's house while Brianna was sleeping. Thankfully, Brianna was able to escape the house with her life.
Dustin and Lenore are also safe. Sadly the dog, cats, and bird did not survive. The house is at this point condemned and will need a full gutting, six to eight months to repair. Dustin was fully insured with USAA.
Dustin is still having a long court battle to divorce his wife, but it's far from final. I can imagine though this will accelerate things. I am told that Dustin's wife, Ashley, was able to board a plane to Utah, but that the police should be waiting to make an arrest at the other end. She will be charged with both arson and attempted manslaughter because Brianna was still in the house.
Ashley is one mixed up woman, I am also hearing that she is pregnant, and that the new baby is likely to be Dustin's. Though Ashley is living with a fellow in Utah who, turns out to be a firefighter of all things. As near as the investigator can tell, she simply grabbed lighter fluid which was handy in the kitchen, and poured this onto the glass covered, electric stove top. She then just turned on the stove and left as she waited for the fluid to flash over.
Ashley then told her mother about it, and her mother has come forward and is on record with the authorities to say that Ashley started the fire.
Laura, Kate, and I are heartbroken to hear about the loss of the dog, Sirius. All Dustin as asked for at this point is for us to return a playpen for Lenore. He's staying with a friend. Of course the Red Cross has stepped in to provide shelter as they work out the insurance claims. Although one kink is that Ashley is a beneficiary of the insurance, and as the arsonist (which technicaly hasn't been proven legally at this point) would potentially void the claim.
Laura and I watched Lenore for part of the afternoon while Dustin was settling things for Brianna's hotel. I got to have Lenore fall asleep on my chest. I has been over 12 years since I had a baby do that.
And as you see, she is quite well.
Please offer your prayers for them all today.
Waking this morning, Laura found that she had a voice mail from Brianna who is the roommate of my co-worker Dustin Murano who brings us Lenore to watch. It turns out that Dustin's wife has set fire to Dustin's house while Brianna was sleeping. Thankfully, Brianna was able to escape the house with her life.
Dustin and Lenore are also safe. Sadly the dog, cats, and bird did not survive. The house is at this point condemned and will need a full gutting, six to eight months to repair. Dustin was fully insured with USAA.
Dustin is still having a long court battle to divorce his wife, but it's far from final. I can imagine though this will accelerate things. I am told that Dustin's wife, Ashley, was able to board a plane to Utah, but that the police should be waiting to make an arrest at the other end. She will be charged with both arson and attempted manslaughter because Brianna was still in the house.
Ashley is one mixed up woman, I am also hearing that she is pregnant, and that the new baby is likely to be Dustin's. Though Ashley is living with a fellow in Utah who, turns out to be a firefighter of all things. As near as the investigator can tell, she simply grabbed lighter fluid which was handy in the kitchen, and poured this onto the glass covered, electric stove top. She then just turned on the stove and left as she waited for the fluid to flash over.
Ashley then told her mother about it, and her mother has come forward and is on record with the authorities to say that Ashley started the fire.
Laura, Kate, and I are heartbroken to hear about the loss of the dog, Sirius. All Dustin as asked for at this point is for us to return a playpen for Lenore. He's staying with a friend. Of course the Red Cross has stepped in to provide shelter as they work out the insurance claims. Although one kink is that Ashley is a beneficiary of the insurance, and as the arsonist (which technicaly hasn't been proven legally at this point) would potentially void the claim.
Laura and I watched Lenore for part of the afternoon while Dustin was settling things for Brianna's hotel. I got to have Lenore fall asleep on my chest. I has been over 12 years since I had a baby do that.
And as you see, she is quite well.
Please offer your prayers for them all today.
Tuesday, May 17, 2016
Trying to cut Expenses
For the past two days, I was looking at reducing expenses by selling off one or both of the cars. We have a Hyundai Sonata and a Saturn Ion, each with over $7000 owed. The hope was to sell both cars and then move into a Dodge Grand Caravan which would better suit our needs now that I won't be driving.
We began with using the USAA website to find competitive used cars on the market, and we though we had found the right thing. The trouble was of course that each of our two cars are in a pretty severe negative equity state, so there is nothing to use to roll into the new car. Between the two we have to pay $418 a month to meet the auto loans.
We drove up to a dealer in Lexington, NC, called M&L Motors and they did all that was possible to try to help us into a better solution. However, there simply wasn't any solution for us at all. Even to just drop my $236 a month on the Ion, I'd have to pay off the loan of $7400. So basically, I could pay $7400 today, or spread my payments by sticking to the actual schedule on the loan. So we're just stuck paying it as the loan was originally created.
The same is true with the Sonata. Oh well, the fact is we now know we are as optimized as we can be with that situation and there nothing to do but keep paying.
For now, the insurance company knows that we are not driving the Ion, so it's saving us a bit in premium. It's also true that Kimberley will soon return to the states, and at that time, we could put the Ion back on the road for Kate to drive, as Kimberley will want her Chrysler back. We'll just take the Ion out for a run once a month to keep the battery charged and the juices flowing.
Social Security also called today to say that my situation is 'medically approved' which basically means they found I have a true disability case, but that the case worker declined to actually name how much of a benefit I should expect to receive. It was simply implied that it was the max, whatever that is for me.
We'll apparently have to wait until September to really know what my top line of the budget is going to look like.
So all I can say is that I am focused on my money issues and doing the best I can. In addition, I finally found the full URL to the gofundme site that Pat Crawford had created for us, and I do appreciate all the donations to date!
We began with using the USAA website to find competitive used cars on the market, and we though we had found the right thing. The trouble was of course that each of our two cars are in a pretty severe negative equity state, so there is nothing to use to roll into the new car. Between the two we have to pay $418 a month to meet the auto loans.
We drove up to a dealer in Lexington, NC, called M&L Motors and they did all that was possible to try to help us into a better solution. However, there simply wasn't any solution for us at all. Even to just drop my $236 a month on the Ion, I'd have to pay off the loan of $7400. So basically, I could pay $7400 today, or spread my payments by sticking to the actual schedule on the loan. So we're just stuck paying it as the loan was originally created.
The same is true with the Sonata. Oh well, the fact is we now know we are as optimized as we can be with that situation and there nothing to do but keep paying.
For now, the insurance company knows that we are not driving the Ion, so it's saving us a bit in premium. It's also true that Kimberley will soon return to the states, and at that time, we could put the Ion back on the road for Kate to drive, as Kimberley will want her Chrysler back. We'll just take the Ion out for a run once a month to keep the battery charged and the juices flowing.
Social Security also called today to say that my situation is 'medically approved' which basically means they found I have a true disability case, but that the case worker declined to actually name how much of a benefit I should expect to receive. It was simply implied that it was the max, whatever that is for me.
We'll apparently have to wait until September to really know what my top line of the budget is going to look like.
So all I can say is that I am focused on my money issues and doing the best I can. In addition, I finally found the full URL to the gofundme site that Pat Crawford had created for us, and I do appreciate all the donations to date!
Sunday, May 15, 2016
Almost, but not Quite Entirely Unlike El Dorado, Arkansas
With a nod to Douglas Adams, I don't really mean to denigrate the people of El Dorado, but only to make again the stark contrast of a town of 18,000 verses the slightly larger metropolis of Charlotte, NC.
I'm just going to extol the virtues of this town I've come to fall in love with these past few months.
With the sixth busiest airport in the nation, we are home to every kind of food culture found on the globe. Some months ago, I was more in the habit of taking the family out for Chinese food at a restaurant on Park Ave just North of Tyvola called Dragonfly. Today, we've discovered that Dragonfly is no more, and in its place is a new Vietnamese restaurant called Ipho. I will first say that I am totally ignorant of Vietnamese fare. I mean totally! However, the owner took me by the arm, and lead through the adventure with Laura, Matthew, Theresa and Anne-Marie.
We really enjoyed every aspect of it. Normally I can say that I can't stomach Thai food, and I had no idea about Vietnamese. Of course they are completely different but I had no idea if I could enjoy any of it.
So is it authentic? Well this I can't judge, but dining a couple of tables over was a Vietnam veteran named Rufus Hutchinson, who of all things is also a real estate agent with Keller Williams.
And I was able to look him up. Rufus actually was visiting a second time, so it would seem that he's found something to merit the return. I'm sure you can e-mail him and get a more detailed review.
Oh and as I read his site, he was also awarded the Silver Star, two Distinguished Flying Crosses, and four Air Medals for valor. I think I'm going to get to know him better, as I do plan to have some real estate investment needs before long, and can never get enough war stories straight from those who lived it.
I just know a few things. First, we were treated very well, and given the opportunity to sample a lot. Secondly, we all enjoyed it, and there was accommodation made for Laura who was very concerned about food allergies. Thirdly, it didn't the bank. For the five of us, we got out with a bill for $51.99 and we were all fed well.
Additionally, when I first walked into the place, I was pretty dizzy, was having a lot of trouble and on the verge of fainting. I had some kind of big beef soup with lots of fresh vegetables that hydrated me very well. It's food that just felt healthy and clean, and it did restore me quite well.
We're going back as the budget allows!
I'm just going to extol the virtues of this town I've come to fall in love with these past few months.
With the sixth busiest airport in the nation, we are home to every kind of food culture found on the globe. Some months ago, I was more in the habit of taking the family out for Chinese food at a restaurant on Park Ave just North of Tyvola called Dragonfly. Today, we've discovered that Dragonfly is no more, and in its place is a new Vietnamese restaurant called Ipho. I will first say that I am totally ignorant of Vietnamese fare. I mean totally! However, the owner took me by the arm, and lead through the adventure with Laura, Matthew, Theresa and Anne-Marie.
We really enjoyed every aspect of it. Normally I can say that I can't stomach Thai food, and I had no idea about Vietnamese. Of course they are completely different but I had no idea if I could enjoy any of it.
So is it authentic? Well this I can't judge, but dining a couple of tables over was a Vietnam veteran named Rufus Hutchinson, who of all things is also a real estate agent with Keller Williams.
And I was able to look him up. Rufus actually was visiting a second time, so it would seem that he's found something to merit the return. I'm sure you can e-mail him and get a more detailed review.
Oh and as I read his site, he was also awarded the Silver Star, two Distinguished Flying Crosses, and four Air Medals for valor. I think I'm going to get to know him better, as I do plan to have some real estate investment needs before long, and can never get enough war stories straight from those who lived it.
I just know a few things. First, we were treated very well, and given the opportunity to sample a lot. Secondly, we all enjoyed it, and there was accommodation made for Laura who was very concerned about food allergies. Thirdly, it didn't the bank. For the five of us, we got out with a bill for $51.99 and we were all fed well.
Additionally, when I first walked into the place, I was pretty dizzy, was having a lot of trouble and on the verge of fainting. I had some kind of big beef soup with lots of fresh vegetables that hydrated me very well. It's food that just felt healthy and clean, and it did restore me quite well.
We're going back as the budget allows!
Thursday, May 12, 2016
Unexpected Gifts
Yesterday, I had mentioned that Dr. Burgess had given me a free bottle of Zytiga, and we didn't know how much the second bottle was going to cost.
Well as it turns out, this is a fairly difficult medication to get. Your typical CVS will not stock or dispense it, it has to be shipped directly to the customer using Fed Ex or the like. This morning I got a call from this special pharmacy, and they confirmed my address to ship me a new bottle. The best news of all is that they have confirmed that it is 100% covered by my insurance, and there will be no out-of-pocket cost to me!
Thank God for that!
As I read more detail of Zytiga, it turns out that when prostate cancer metastasizes, the new legions themselves have the ability to produce more testosterone to continue to feed the cancer growth. Typical Androgen Deprivation Therapies (ADT) will only suppress the testosterone produced by the testes, but Zytiga will attack it all. So clearly this becomes a more necessary step when I'm unresponsive to previous treatments.
It seems like it's pretty harsh stuff too. Warnings abound that women should not handle this without gloves, and there is even a note to say that it is unknown if Zytiga can pass through the semen, and un-protected sex is highly discouraged because of how poisonous this is to women. I also have to be careful to ingest only on an empty stomach, and to set a particular time of the day to take it consistently. So I now have to block off time in my day when I shouldn't eat.
Well onto another note.
Yesterday I also had a contractor from Forever Living Homes visit to measure the house and look to make it safer. There wasn't a whole lot we wanted to change other than put in a lot of grab bars that meet ADA specification. The rough guess is that it should cost about $1000, and this is unlikely to be covered by insurance. A harder number should be coming soon, and we look forward to the railing. The other nice news is that there are railing options that still fit the house aesthetically and remain ADA compliant. I don't mind the typical brushed stainless steel in my master bathroom, but for the stairs leading up to the second floor, I would like to get oak rails that match our current railing and dark stain.
Even after I pass, these rails will be helpful to Laura as well. While my cancer may be taking center stage at the moment we should also recognize that Laura is not in the best of health either. She's an insulin dependent diabetic, and has a lot of difficulty moving herself around too. We appreciate every donation and aid received.
God bless you all!
Well as it turns out, this is a fairly difficult medication to get. Your typical CVS will not stock or dispense it, it has to be shipped directly to the customer using Fed Ex or the like. This morning I got a call from this special pharmacy, and they confirmed my address to ship me a new bottle. The best news of all is that they have confirmed that it is 100% covered by my insurance, and there will be no out-of-pocket cost to me!
Thank God for that!
As I read more detail of Zytiga, it turns out that when prostate cancer metastasizes, the new legions themselves have the ability to produce more testosterone to continue to feed the cancer growth. Typical Androgen Deprivation Therapies (ADT) will only suppress the testosterone produced by the testes, but Zytiga will attack it all. So clearly this becomes a more necessary step when I'm unresponsive to previous treatments.
It seems like it's pretty harsh stuff too. Warnings abound that women should not handle this without gloves, and there is even a note to say that it is unknown if Zytiga can pass through the semen, and un-protected sex is highly discouraged because of how poisonous this is to women. I also have to be careful to ingest only on an empty stomach, and to set a particular time of the day to take it consistently. So I now have to block off time in my day when I shouldn't eat.
Well onto another note.
Yesterday I also had a contractor from Forever Living Homes visit to measure the house and look to make it safer. There wasn't a whole lot we wanted to change other than put in a lot of grab bars that meet ADA specification. The rough guess is that it should cost about $1000, and this is unlikely to be covered by insurance. A harder number should be coming soon, and we look forward to the railing. The other nice news is that there are railing options that still fit the house aesthetically and remain ADA compliant. I don't mind the typical brushed stainless steel in my master bathroom, but for the stairs leading up to the second floor, I would like to get oak rails that match our current railing and dark stain.
Even after I pass, these rails will be helpful to Laura as well. While my cancer may be taking center stage at the moment we should also recognize that Laura is not in the best of health either. She's an insulin dependent diabetic, and has a lot of difficulty moving herself around too. We appreciate every donation and aid received.
God bless you all!
Wednesday, May 11, 2016
I Never Expected Retirement to be so Darn Busy!
There's a lot of activity from yesterday to today.
My first happy discovery was that back in May of 2012 I had bought a full copy of Sony Vega Movie Studio for about $70, and I had used that a lot to create videos of my Eve Online exploits. The trouble was that at some point I had a hard drive crash and never recovered my installation of the software.
I happily discovered last night that I could log into Sony, and was able to easily get a second copy and recover my license.
My sister Julie had produced a very good slide show video last Christmas with a lot of source pictures from when my mother was pregnant with me and of course a lot of growing up with my sisters and all. When Julie had first thought to produce this, I think she was planning on a video more focused on my mother than of me and my children, and I sort of misunderstood the purpose. Julie is very devoted to Mom, and it's a good thing too because she takes up some of the slack where I should be taking better care of Mom.
However, it did tug at my heart some as I watched the past 52 years flyby in a bit less than an hour. What I saw was just an ordinary life, and the fun that was had during the last two generations of our family. God has made billions of ordinary lives, and so as I watched this, it occured to me that there is no shame in not making some extraodrinary impact on history, such as exploring the South Pole with Earnest Shakelton, or contributions from great scientists like Tesla, Marconi, or Faraday.
What I did do was raise a good family, and not walk away from my basic responsibilities as a father. To be sure, we have had some rough financial trouble, and there were some rocky years when we lost the house in Massachusetts, and some on Laura's side were pressing for a divorce, but through it all we did stick together and have been married for over twenty-five years. Laura and I have raised eight very excellent children, not a single one of them cause for shame. In this slide show that Julie had produced, were years of smiles and small adventures for our children. And this should be enough to make anyone proud.
I am motivated to produce my own video that would be similar, but focused slightly differently so that it's more of a legacy message for my children. I plan to take months at this, but it's very encouraging that I have the software to do it again, and I didn't have to outlay any more money for it.
This morning, Laura and I had a visit with Dr. Burgess to get my updated Lupron shot to continue to suppress my testosterone and slow the cancer. In addition, because the disease is progressing faster than expected, (Apparently the Taxotere chemo series I took earlier this Winter wasn't as effective as had been hoped) Dr. Burgess has started me on Zytiga (Abiraterone acetate) today. This is supposed to be a very expensive medication, and he had a sample bottle worth about $10,000 in his office. He provided that to me at no charge, and should last a month. However the second month supply is likely to be expensive, as we don't know how much will be covered by insurance.
Dr Burgess also had the option to start me on Xtandi, which he feels is very similar, the only difference is that he had no free samples, so we went with Zytigra.
Following this appointment, Kate took Stephen and myself out for a pedicure, It was actually my suggestion last night. Stephen was going to fly back to Connecticut this afternoon, and I know how much Kate wanted to "break him in" and get another male to experience culture that many men never bother to indulge. For me, it's actually becoming more of a true medical neccesity as I can't easily reach my toes to cut my nails on my own. But for today, it was just a fun thing for the three of us to share.
I had intended to get more work done on my current finances, but after that small bit of activity, I was already quite wiped.
Later this evening, I bought us two rocking chairs from Gander Mountain and a table for the front patio, The wifi reaches quite nicely out here so I can post to the blog quite comfortably. And rather than being entirely reclusive from my nieghborhood I can greet the dog walkers as they use the side walks. This truly is going to be a great adventure over these remaining months.
oh also I was officially weighed in at Dr. Burgess's office at 250 so the weight continues to drop since Chirstmas, but I'm not totally wasting away yet either.
I hope that my readers can get some sense that life is a gift and that they probably have more things in thier own life to be thankful for, if they would only open thier eyes a bit wider and praise God for his many good gifts.
My first happy discovery was that back in May of 2012 I had bought a full copy of Sony Vega Movie Studio for about $70, and I had used that a lot to create videos of my Eve Online exploits. The trouble was that at some point I had a hard drive crash and never recovered my installation of the software.
I happily discovered last night that I could log into Sony, and was able to easily get a second copy and recover my license.
My sister Julie had produced a very good slide show video last Christmas with a lot of source pictures from when my mother was pregnant with me and of course a lot of growing up with my sisters and all. When Julie had first thought to produce this, I think she was planning on a video more focused on my mother than of me and my children, and I sort of misunderstood the purpose. Julie is very devoted to Mom, and it's a good thing too because she takes up some of the slack where I should be taking better care of Mom.
However, it did tug at my heart some as I watched the past 52 years flyby in a bit less than an hour. What I saw was just an ordinary life, and the fun that was had during the last two generations of our family. God has made billions of ordinary lives, and so as I watched this, it occured to me that there is no shame in not making some extraodrinary impact on history, such as exploring the South Pole with Earnest Shakelton, or contributions from great scientists like Tesla, Marconi, or Faraday.
What I did do was raise a good family, and not walk away from my basic responsibilities as a father. To be sure, we have had some rough financial trouble, and there were some rocky years when we lost the house in Massachusetts, and some on Laura's side were pressing for a divorce, but through it all we did stick together and have been married for over twenty-five years. Laura and I have raised eight very excellent children, not a single one of them cause for shame. In this slide show that Julie had produced, were years of smiles and small adventures for our children. And this should be enough to make anyone proud.
I am motivated to produce my own video that would be similar, but focused slightly differently so that it's more of a legacy message for my children. I plan to take months at this, but it's very encouraging that I have the software to do it again, and I didn't have to outlay any more money for it.
This morning, Laura and I had a visit with Dr. Burgess to get my updated Lupron shot to continue to suppress my testosterone and slow the cancer. In addition, because the disease is progressing faster than expected, (Apparently the Taxotere chemo series I took earlier this Winter wasn't as effective as had been hoped) Dr. Burgess has started me on Zytiga (Abiraterone acetate) today. This is supposed to be a very expensive medication, and he had a sample bottle worth about $10,000 in his office. He provided that to me at no charge, and should last a month. However the second month supply is likely to be expensive, as we don't know how much will be covered by insurance.
Dr Burgess also had the option to start me on Xtandi, which he feels is very similar, the only difference is that he had no free samples, so we went with Zytigra.
Following this appointment, Kate took Stephen and myself out for a pedicure, It was actually my suggestion last night. Stephen was going to fly back to Connecticut this afternoon, and I know how much Kate wanted to "break him in" and get another male to experience culture that many men never bother to indulge. For me, it's actually becoming more of a true medical neccesity as I can't easily reach my toes to cut my nails on my own. But for today, it was just a fun thing for the three of us to share.
I had intended to get more work done on my current finances, but after that small bit of activity, I was already quite wiped.
Later this evening, I bought us two rocking chairs from Gander Mountain and a table for the front patio, The wifi reaches quite nicely out here so I can post to the blog quite comfortably. And rather than being entirely reclusive from my nieghborhood I can greet the dog walkers as they use the side walks. This truly is going to be a great adventure over these remaining months.
oh also I was officially weighed in at Dr. Burgess's office at 250 so the weight continues to drop since Chirstmas, but I'm not totally wasting away yet either.
I hope that my readers can get some sense that life is a gift and that they probably have more things in thier own life to be thankful for, if they would only open thier eyes a bit wider and praise God for his many good gifts.
Tuesday, May 10, 2016
Catheter out and Other Stuff
This is most likely a small thing for a lot of people, but for me it was simply the first time for everything.
Melissa from urology had suggested yesterday that I try to remove my catheter on my own this morning. I had about a dozen syringes left over from the nefrostimy, so I was able to deflate the catherter and it pulled out wthout any fuss. Again, not a big deal, just a first for me.
I had my first visit with my in home physical therapist shortly after and we worked on balance. Clearly I depend on my eyes more than I thought, and there's quite a bit of work to do in this regard.
Today was another first as my co-worker, Dustin, dropped off his fifteen month old daughter for Laura and Kate to watch. The objective was so that Laura could continue to watch the baby while keeping an eye on me. She's a very pleasant baby, and while I don't expect to live long enough to see any of my own grand children, it was fun to play a bit more of a grand-fatherly role. I don't think she'll be a bother to me if I need any rest or anything, so she's very welcome to the home. The dogs enjoy her company, and she likes our dogs just fine. I thinks she's having a lot of fun.
If Dustin feels OK with it, I'll likely post some pictures. It's just that I am a privacy nut, and would want to be sure I had permission to do that first.
I managed to get most of the bills paid today. The Verizon bill is currently divided into two accounts, with the kids being all on one and Laura and I on the other, I
m going to make the kids that work start to pay me for thier phones, as the bill is $331 this month just for them.
However, I am current on my mortgage and utilities, including Time Warner, so I will be maintaing my internet so I can continue these posts and everything else. Face it, for me the internet is huge part of my life that I won't be able to dispense with, and I expect to be more dependant on it s my physcal activity reduces some.
I have updated my short term disability provider yesterday with all the hospital updates from last week, so I expect the claim to continue shortly,
Oh and I also got some help from the Housing Association. While I am some $600 arrears in my HOA dues from September, they are willing to wave all late and attourney fees provided I get current with the $600, which I still have saved in my account.
I need to check on my Social Security Status soon, but I feel a lot of things are comming together quite well.
I thank Pat Crawford for having set up a gofundme.com account and we've recieved sigificant contributions from it - the problem for me though is thatis is somehow tied in with facebook, and I refuse to get invovled with facebook so I have no idea how to access the information, and Laura's pretty ignorant about it too. She can't tell me where the URL is or how to get it, she just sccops up the money into her account, and I have no visiblity to where it come from.
I'd like to get that fixed, because I owe a great deal of gratitude to all these benefators, but I can't say anything about it, if i can't know who you are. I can say that Laura used $590.16 to pay down the co-pay owed to the Urologist. That was a bit better than half our outstanding balance which is now $407. This is significant as the Urologist's office manager was putting up road blocks and witholding my medical records so that Social Security (SSA) could not review them and make a determination. The medical staff was surprised that someone was being overzeallous in the bill collecting, and is trying to get this fixed so I can hear from SSA, settle my income and work on payment plans. It just will take a little time, but it's annoying when someone gets this myopic about the process and does something this collossaly dumb. I just have to offer it up and be a little patient while we work the problem.
So again, my spirits are as high as they can be, I'm tremendously optimistic about the future and if anything, these small stuggles are just something to do to keep me entertained anyway!
Pax vobiscum
Melissa from urology had suggested yesterday that I try to remove my catheter on my own this morning. I had about a dozen syringes left over from the nefrostimy, so I was able to deflate the catherter and it pulled out wthout any fuss. Again, not a big deal, just a first for me.
I had my first visit with my in home physical therapist shortly after and we worked on balance. Clearly I depend on my eyes more than I thought, and there's quite a bit of work to do in this regard.
Today was another first as my co-worker, Dustin, dropped off his fifteen month old daughter for Laura and Kate to watch. The objective was so that Laura could continue to watch the baby while keeping an eye on me. She's a very pleasant baby, and while I don't expect to live long enough to see any of my own grand children, it was fun to play a bit more of a grand-fatherly role. I don't think she'll be a bother to me if I need any rest or anything, so she's very welcome to the home. The dogs enjoy her company, and she likes our dogs just fine. I thinks she's having a lot of fun.
If Dustin feels OK with it, I'll likely post some pictures. It's just that I am a privacy nut, and would want to be sure I had permission to do that first.
I managed to get most of the bills paid today. The Verizon bill is currently divided into two accounts, with the kids being all on one and Laura and I on the other, I
m going to make the kids that work start to pay me for thier phones, as the bill is $331 this month just for them.
However, I am current on my mortgage and utilities, including Time Warner, so I will be maintaing my internet so I can continue these posts and everything else. Face it, for me the internet is huge part of my life that I won't be able to dispense with, and I expect to be more dependant on it s my physcal activity reduces some.
I have updated my short term disability provider yesterday with all the hospital updates from last week, so I expect the claim to continue shortly,
Oh and I also got some help from the Housing Association. While I am some $600 arrears in my HOA dues from September, they are willing to wave all late and attourney fees provided I get current with the $600, which I still have saved in my account.
I need to check on my Social Security Status soon, but I feel a lot of things are comming together quite well.
I thank Pat Crawford for having set up a gofundme.com account and we've recieved sigificant contributions from it - the problem for me though is thatis is somehow tied in with facebook, and I refuse to get invovled with facebook so I have no idea how to access the information, and Laura's pretty ignorant about it too. She can't tell me where the URL is or how to get it, she just sccops up the money into her account, and I have no visiblity to where it come from.
I'd like to get that fixed, because I owe a great deal of gratitude to all these benefators, but I can't say anything about it, if i can't know who you are. I can say that Laura used $590.16 to pay down the co-pay owed to the Urologist. That was a bit better than half our outstanding balance which is now $407. This is significant as the Urologist's office manager was putting up road blocks and witholding my medical records so that Social Security (SSA) could not review them and make a determination. The medical staff was surprised that someone was being overzeallous in the bill collecting, and is trying to get this fixed so I can hear from SSA, settle my income and work on payment plans. It just will take a little time, but it's annoying when someone gets this myopic about the process and does something this collossaly dumb. I just have to offer it up and be a little patient while we work the problem.
So again, my spirits are as high as they can be, I'm tremendously optimistic about the future and if anything, these small stuggles are just something to do to keep me entertained anyway!
Pax vobiscum
Sunday, May 8, 2016
On Mother's Day
I have to admit, even after twenty five years of being a dad and fifty two years of being a son, I'm just awful at making Mother's Day a special day.
I suppose this year I get a little bit of a pass with all the hospital attention. So while I never got around to planning anything, one great benefit was that Laura had all her sons home to visit me, and she of course got to share their company was well.
We just put Michael back on the plane at 14:00 local time, and Stephen is due to go up to CT Wednesday. Still it was a great visit all the way around as Laura enjoys the grill and the boys bought quite a bit of good meat over the past couple of nights, so we feasted, and it's always good for my recovery as well.
Thanks boys! You saved me from another Mother's Day embarrassment.
Also the younger girls did their part by buying a lot of flowers and they arraigned them last night to decorate the down stairs while Laura slept. It was like waking to a mini-Christmas, and it was appreciated by all.
The best I could offer was to keep from getting into a foul mood. Sometimes though that's enough.
I suppose this year I get a little bit of a pass with all the hospital attention. So while I never got around to planning anything, one great benefit was that Laura had all her sons home to visit me, and she of course got to share their company was well.
We just put Michael back on the plane at 14:00 local time, and Stephen is due to go up to CT Wednesday. Still it was a great visit all the way around as Laura enjoys the grill and the boys bought quite a bit of good meat over the past couple of nights, so we feasted, and it's always good for my recovery as well.
Thanks boys! You saved me from another Mother's Day embarrassment.
Also the younger girls did their part by buying a lot of flowers and they arraigned them last night to decorate the down stairs while Laura slept. It was like waking to a mini-Christmas, and it was appreciated by all.
The best I could offer was to keep from getting into a foul mood. Sometimes though that's enough.
Sometimes it's Just Better When you Listen
I'm just a little annoyed with my urologist team from this week. Catheters come in many sizes, and a typical place to start is with a 16 gauge catheter that is a specific thickness. Emergency Rooms are most often stocked with either 16 or the slightly larger 18 gauge.
If you recall from my adventures in September, I had progressive problems with urine and blood bypassing the catheter tube and making a rather big mess. Eventually they had me on a 24 gauge. That's a little unusual, but it was mostly brought on by the excessive clotting prior to Dr. Basrawala's surgery. After surgery, Dr. Basrawala left me with a 20 gauge which seemed to fit well.
Prior to discharge Friday, I had insisted that they upgrade me to a 20 gauge because I had two episodes of leaking overnight while in the hospital. Someone in urology declined to change it on the theory that my bladder was already aggregated by the stent in the right ureter, and that to upgrade me would only stretch things out further.
Well now that I am home, I am still pissing my pants because this darn 16 gauge leaks! I bought a new bed last year and it was pretty expensive, I don't want to damage this overnight either. So very soon I will insist they either remove this 16 entirely, or upgrade to 20. It just would have saved some bother if they had listened Friday.
If you recall from my adventures in September, I had progressive problems with urine and blood bypassing the catheter tube and making a rather big mess. Eventually they had me on a 24 gauge. That's a little unusual, but it was mostly brought on by the excessive clotting prior to Dr. Basrawala's surgery. After surgery, Dr. Basrawala left me with a 20 gauge which seemed to fit well.
Prior to discharge Friday, I had insisted that they upgrade me to a 20 gauge because I had two episodes of leaking overnight while in the hospital. Someone in urology declined to change it on the theory that my bladder was already aggregated by the stent in the right ureter, and that to upgrade me would only stretch things out further.
Well now that I am home, I am still pissing my pants because this darn 16 gauge leaks! I bought a new bed last year and it was pretty expensive, I don't want to damage this overnight either. So very soon I will insist they either remove this 16 entirely, or upgrade to 20. It just would have saved some bother if they had listened Friday.
Saturday, May 7, 2016
Nice Pleasant Day
Michael and Stephen are still visiting but Mike will be flying back tomorrow to meet his boat for a long deploy. He had decided to take this recent leave just to be sure that he got a last look in should something happen over the next six months. Nobody anticipates trouble, but it was just a good opportunity for him to take. Also while I had not prepared anything for Mother's Day, this visit served to be a great gift for Laura.
Stephen will be due back later in the week, but it was grand to have him down as well.
I had a nice talk with my mother via face-time today. As again I have made no preparation for her Mother's Day.
I also owe Julie a call for her Mother's Day.
I guess I'm still just a little too self absorbed at my age. I suppose I can bring that up next time I'm in the confessional. Fr. Reid payed me a nice visit while I was in the hospital, and while I didn't have anything really grievous to confess, there were still some faults to work through, and until I die, I expect that to be the case. The key is to look deeper for these faults now.
Earlier today I also had my first visit with my in-home physical therapist, and I tested poorly enough that there is an insurance claim to be made in my case, and tested well enough that there's good hope for restored mobility. Also, I recruited her into playing ingress, and I think she'll be recommending it to her other clients. And of course, all for the Enlightened !
Laura and I are both looking forward to make some small home modifications such as hospital grade hand rails and bath tub assists that will also help Laura as she gets older.
I still have a catheter to manage, and a few upcoming doctor's appointments this week, and a call or two to Social Security but all should be well.
And in all this, Janis and Chris came to visit today and we had a nice pizza party. So how could I not be happy with life in general ?
I thank God for his many blessings!
Stephen will be due back later in the week, but it was grand to have him down as well.
I had a nice talk with my mother via face-time today. As again I have made no preparation for her Mother's Day.
I also owe Julie a call for her Mother's Day.
I guess I'm still just a little too self absorbed at my age. I suppose I can bring that up next time I'm in the confessional. Fr. Reid payed me a nice visit while I was in the hospital, and while I didn't have anything really grievous to confess, there were still some faults to work through, and until I die, I expect that to be the case. The key is to look deeper for these faults now.
Earlier today I also had my first visit with my in-home physical therapist, and I tested poorly enough that there is an insurance claim to be made in my case, and tested well enough that there's good hope for restored mobility. Also, I recruited her into playing ingress, and I think she'll be recommending it to her other clients. And of course, all for the Enlightened !
Laura and I are both looking forward to make some small home modifications such as hospital grade hand rails and bath tub assists that will also help Laura as she gets older.
I still have a catheter to manage, and a few upcoming doctor's appointments this week, and a call or two to Social Security but all should be well.
And in all this, Janis and Chris came to visit today and we had a nice pizza party. So how could I not be happy with life in general ?
I thank God for his many blessings!
Back Home Safe
We completed the fifth of five radiation treatments today, and I got a lot of help with Physical Therapy. I am still very unsteady on my feet, and need escort up and down stairs. However, I expect to sleep well on my bed on the second floor, and have sorted all my new medications for the next week's plan.
There will be more attention to come as I have a number of follow up visits, and need my catheter removed. There will be an in-home physical therapist to help me work back some strength.
Additionally, we'll be making some modifications to the house to make it more cripple friendly, such as strong hand rails, and bath tub seats.
Also, I have used my givmohr sling a great deal more this week, and I think it has helped my shoulder quite a bit making this typing easier. Hopefully it will mean more blog postings.
Thanks for all the kind visits and phone calls this week. It helped a lot. I also had a visit in hospital from my boss at Heartland Payment systems and I verbally announced my intention of not going back to work from this date on. He's going to help me get every benefit still due me from short and long term disability, and I hope to hear from Social Security soon.
In addition to this being due to disability, I'm still at the point where I am training to maintain the software. I still have a couple of good months of hard work left to do before I begin to become productive. Therefore any salary towards me will be a bad investment on Heartland's part because as my life expectancy is shorter, the opportunity for Heartland to recover its investment in me diminishes. This is hard for me to feel good about my work. So I have to quit and enjoy what's left.
Also, Fr. Reid indicated that St. Anne's will be able to offer some help in making this transition. So overall, I can't really be in better spirits.
Pax Vobiscum
There will be more attention to come as I have a number of follow up visits, and need my catheter removed. There will be an in-home physical therapist to help me work back some strength.
Additionally, we'll be making some modifications to the house to make it more cripple friendly, such as strong hand rails, and bath tub seats.
Also, I have used my givmohr sling a great deal more this week, and I think it has helped my shoulder quite a bit making this typing easier. Hopefully it will mean more blog postings.
Thanks for all the kind visits and phone calls this week. It helped a lot. I also had a visit in hospital from my boss at Heartland Payment systems and I verbally announced my intention of not going back to work from this date on. He's going to help me get every benefit still due me from short and long term disability, and I hope to hear from Social Security soon.
In addition to this being due to disability, I'm still at the point where I am training to maintain the software. I still have a couple of good months of hard work left to do before I begin to become productive. Therefore any salary towards me will be a bad investment on Heartland's part because as my life expectancy is shorter, the opportunity for Heartland to recover its investment in me diminishes. This is hard for me to feel good about my work. So I have to quit and enjoy what's left.
Also, Fr. Reid indicated that St. Anne's will be able to offer some help in making this transition. So overall, I can't really be in better spirits.
Pax Vobiscum
Thursday, May 5, 2016
Dogs and our Quality of Life
This is Stanley. One of the four strays we picked up while living in El Dorado, AR. He's mostly a sweet dog though he can be a bit of a stinker with other dogs.
He's featured today in the blog because as I had talked with Dr. Bobo, my radiologist, this morning I learned that there was a very short window from when I detected the neuropathy (numbness) to when Dr. Bobo's treatment was going to be effective. Had I waited some 48 hours latter than when I actually called Sunday, there would hae been more permanent damage to my mobility that would never be corrected.
You see, the nature of my neuopathy was that I could not feel it unless someone or somethng was touching me from the outside. It was Stan's friendly greeting when he brushed up against me and something didn't feel right. This is when I felt from my leg up to my hips and found the numbness progressing rapidly. I called Dr. Burgess's office immediatly, and by the end of the call, the numbness had spread to just under my nipples.
For Stan, mortal creature that you are, I thank you from the bottom of my heart, and I thank God for his wisdom to have created dogs so that they can serve man as they do. To me, this is more proof of God's love for us.
Getting back to the numbness, the fact that it stopped just under my pectorals was a symptom that matched perfectly with the detection of the T6 & T7 legions.
Again, I am very pleased with the skill demonstrated by the entire staff at CMC Pineville.
He's featured today in the blog because as I had talked with Dr. Bobo, my radiologist, this morning I learned that there was a very short window from when I detected the neuropathy (numbness) to when Dr. Bobo's treatment was going to be effective. Had I waited some 48 hours latter than when I actually called Sunday, there would hae been more permanent damage to my mobility that would never be corrected.
You see, the nature of my neuopathy was that I could not feel it unless someone or somethng was touching me from the outside. It was Stan's friendly greeting when he brushed up against me and something didn't feel right. This is when I felt from my leg up to my hips and found the numbness progressing rapidly. I called Dr. Burgess's office immediatly, and by the end of the call, the numbness had spread to just under my nipples.
For Stan, mortal creature that you are, I thank you from the bottom of my heart, and I thank God for his wisdom to have created dogs so that they can serve man as they do. To me, this is more proof of God's love for us.
Dr. William Bobo |
Jamie, Andrew, and Tina setting up my alignment |
Getting back to the numbness, the fact that it stopped just under my pectorals was a symptom that matched perfectly with the detection of the T6 & T7 legions.
Again, I am very pleased with the skill demonstrated by the entire staff at CMC Pineville.
Wednesday, May 4, 2016
In Hospital Again
I have made posts in quite some time because I mentioned how the pain in the left arm has made it difficult to type. I m trying new posture and the use of my tablet as I sit here in the hospital bed.
I can't quite relax my arm as I would like, but I should be able to get some thoughts published.
It started Sunday after Mass that I noticed a new and alarming neuropathy as one of my dogs brushed against my leg and it just didn't feel right, and as I checked, it seemed the numbness was in both legs and reached from my feet all the way up to my hips. So it looked like it was time for an emergency room visit.
I first called my oncologist after hours number to make sure I wasn't panicking and that they would have the word in case they wanted to intervene while I was at ER. Well they backed me up and wanted me to go to ER.
We checked in and after a couple of hours of triage were finally seen and a full thoracic MRI was scheduled. I had just completed a cervical MRI the week before to try to chase down the trouble in the left shoulder.
Sunday's MRI discovered two new legions on T6 and T7 which perfectly explained my neuropathy which had now accellerated up to my pectorals. So I was admitted, and radiation was scheduled for the morning. I was not able to lift my legs straight out in front of me at that time. I was also given steroids to relieve the spinal inflammation.
In the morning I had good improvement from the steroids alone, and was able to lift my legs. I stopped panicking at that moment. I have been getting improvement in the strength of both legs as I continue treatment.
Michael got the word and has taken emergency leave and should be in Charlotte in the hour or so. Hopefully he won't be too tired and can come visit me tonight.
His boat s due to go on a long deployment soon, so he wants to be sure he gets a good visit in just in case I'm not here when he surfaces again.
I have a lot to hope for, and my spirit continue to be up. I had a good visit from my priest today, and I continue to look forward to a bright future. I believe I will be home Friday evening. Now I just want to spell check and publish. The good news is this tablet seems to do the job and you should expect more updates.
I can't quite relax my arm as I would like, but I should be able to get some thoughts published.
It started Sunday after Mass that I noticed a new and alarming neuropathy as one of my dogs brushed against my leg and it just didn't feel right, and as I checked, it seemed the numbness was in both legs and reached from my feet all the way up to my hips. So it looked like it was time for an emergency room visit.
I first called my oncologist after hours number to make sure I wasn't panicking and that they would have the word in case they wanted to intervene while I was at ER. Well they backed me up and wanted me to go to ER.
We checked in and after a couple of hours of triage were finally seen and a full thoracic MRI was scheduled. I had just completed a cervical MRI the week before to try to chase down the trouble in the left shoulder.
Sunday's MRI discovered two new legions on T6 and T7 which perfectly explained my neuropathy which had now accellerated up to my pectorals. So I was admitted, and radiation was scheduled for the morning. I was not able to lift my legs straight out in front of me at that time. I was also given steroids to relieve the spinal inflammation.
In the morning I had good improvement from the steroids alone, and was able to lift my legs. I stopped panicking at that moment. I have been getting improvement in the strength of both legs as I continue treatment.
Michael got the word and has taken emergency leave and should be in Charlotte in the hour or so. Hopefully he won't be too tired and can come visit me tonight.
His boat s due to go on a long deployment soon, so he wants to be sure he gets a good visit in just in case I'm not here when he surfaces again.
I have a lot to hope for, and my spirit continue to be up. I had a good visit from my priest today, and I continue to look forward to a bright future. I believe I will be home Friday evening. Now I just want to spell check and publish. The good news is this tablet seems to do the job and you should expect more updates.
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