Thursday, August 4, 2016

Schedule Snafu - for Hospice

And I hope I'm getting this right, I'm getting a lot of distractions to process, and the more distractions, the lower my "lucid perception level" goes down with my doctprs and the less the doctors  are going to trust me make the best descions i can.  You must all let me rest and utialize this blog more.  Please comment on the blog more.

So the latest problem is that the hospital must see me manage pain medication for 48 hours without resorting to heavy opiods that I am not permitted to use while at home.  They need to put me into a temporary hospice facility without access to these drugs before letting me home or keep me in hospital and segragate me from such drugs.
How long that will be, I can't say because I didn't actually clock my start time. I have been too busy trying to listening to some three doctors, nine nurses and help from nursing assistants and a bunch of family with limited information gleaned from dozens of friends who have had non-relavent incedental information of their cancer experiences.  I try to be as polite as possible, but your information does not apply to me, and I shouldn't be listening to it.

So let's report things I do know and can share.  Stephen is in Charlotte, we are trying to preoare my master bed room so that it meets with the needs of hospice care, that will tske some time as we meed to have the room de-cluttered of junk, and able to receive the hospice bed which should take one day after I arrive.

Kim is due to arrive in Charlotte on 8/5 16:34 EDT at the airport.

Mike's submarine is still 'dark' to Red Cross. Red Cross can confirm that the sub has heard our messsge, but we do not know when or where he shall surface.
This is important because only Michael has been given Health Card Proxy Attorney. If I go down now with a DNR and Mike's not here to reverse it, I won't legally live. so we have to wait on Michael some.

There's just too much to do and I need Mike available, for this descision.  So how long before I get out of the hospice care? It depends on how soon thst will be, and I don't know my start clock yet.

So please, help me, and read the blog and give me time to write it. You must read it for it to working.


7 comments:

  1. prayers for things going right for the end. i hope michael responds soon and I hope the transition to hospice care at home goes smoothly... love you.

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  2. Ditto from your mom!

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  3. Hate to see all of this, sir. :(

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  4. You are doing it right. My prayers are with you.

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  5. I'm so sorry to hear that you are dealing with such serious illness. You and your family are in our thoughts and prayers.

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  6. You are in my prayers Eric, may God bless you

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  7. Joe Coakley15:34

    Boy, you're touchy. If a standing DNR order puts you in danger of being allowed to die prematurely, there's a simple solution: cancel it until Mike is back; then reinstate it. Better still, name a different Health Card Proxy Attorney, like Laura, since Sailor Mike is not always going to be at your bedside between now and 'lights out' time.God bless you all. Joe Coakley

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